- Associated Press - Saturday, October 11, 2014

NEW ORLEANS (AP) - A disease that causes deafness and gradual blindness will be the subject of a free four-hour conference at Pennington Biomedical Research Center.

Usher syndrome is the leading genetic cause of deaf-blindness. The National Institutes of Health says it affects about one child in 25,000. But it is more common in certain groups, including Cajuns.

LSU Health New Orleans says the conference will last from 10 a.m. to 2 p.m. on Saturday, Oct. 25, at the center’s main auditorium in Baton Rouge.

Speakers will discuss causes, diagnosis, treatment and the latest research on Usher Syndrome.

Patients, their families and professionals are invited, and will be able to ask questions.

In the day’s final presentation, three parents whose children have Usher syndrome will talk about their experiences, hopes and dreams.

The symposium is sponsored by LSU Health New Orleans, Usher 2020 Foundation, Eye on Jacob, Low Vision, Etc., Enhanced Vision, and the LSU Health New Orleans Human Development Center.

To register for the symposium or for more information, contact Susie Trotochaud at strotochaud@usher2020.org or call 877-926-0859.



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