- The Washington Times - Sunday, February 24, 2002

Books

• "Children With Fragile X Syndrome: A Parents' Guide," by Jayne Dixon Weber, Woodbine House, 2000. This guide covers topics such as diagnosis, medical concerns, education and family life and includes many statements from parents of children with Fragile X.

Associations

The National Fragile X Foundation, PO Box 190488, San Francisco, CA 94119-0488. Phone: 800/688-8765. Web site: www.nfxf.org. This foundation, a nonprofit organization, offers information about the syndrome and specializes in family support.

• FRAXA Research Foundation, 45 Pleasant St., Newburyport, MA 01950. Phone: 978/462-1866. Web site: www.fraxa.org.

Online

• The Frank Porter Graham Child Development Institute, a child-development education organization based at the University of North Carolina, offers research data and lists of scientists and investigators on its Web site (www.fpg.unc.edu).

• The IDEAS Partnership, funded by the U.S. Department of Education's Office of Special Education and Rehabilitative Services, has a Web site (www.ideapractices.org) dedicated to helping families maximize their children's potential in public education.


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