- Associated Press - Saturday, December 3, 2016

MITCHELL, S.D. (AP) - Firefighters in Mitchell are working together to raise money for a 4-year-old boy diagnosed with a rare form of muscular dystrophy.

Paxton Hruby was diagnosed in October with the genetic disease that causes progressive weakness and loss of muscle mass. The family will face ongoing medical expenses throughout the boy’s life because there is no cure for muscular dystrophy, the Daily Republic (https://bit.ly/2g2365I) reported.

The Mitchell-based International Association of Fire Fighters and Alexandria fire department will host a fundraiser during the Parade of Lights on Monday, and the Hrubys will ride on fire trucks.

Paxton’s dad, Jeff Hruby, says his son’s positive attitude has been uplifting.

“How can you be frustrated when you have a kid like that?” Hruby said, as Paxton roamed the house in one of his many superhero costumes. “Of course it’s hard because it’s your kid and you don’t want to see them ever struggle in life, but he’s so happy.”

Mayo Clinic statistics show about one in 3,500 people has muscular dystrophy.

Doctors first determined Paxton had a neurological condition at five months old, but didn’t know what it was.

The form of muscular dystrophy that Paxton has is the first documented case of its kind, and doctors predict he’ll need a walker or wheelchair by the time he’s 10 years old.

The Hruby family is thankful for the support the Alexandria community has given, and Jodi Hruby said students at school have been kind to Paxton.

“We’re going to have to let him grow up,” Jodi said. “Of course, if we could change it, we would in a heartbeat. But we can’t, so we wouldn’t change a thing.”


Information from: The Daily Republic, https://www.mitchellrepublic.com

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