- Associated Press - Friday, April 13, 2018

TRENTON, Mo. (AP) - Rylan Miller was born a healthy baby girl. And up until she was 7-years-old, her eyesight was perfect.

In the last three years, Rylan has lost her sight completely in one eye, and her other eye has become very blurry.

If a doctor can’t treat her soon - the 10-year-old knows she will go totally blind. But her condition is so rare, not a single doctor at Children’s Mercy has been able to diagnose her.

The world through a fourth grader’s eye is imaginative, and full of possibilities. But unlike most kids her age, some of those possibilities are shifting for Rylan. But is she scared?

“Sometimes, if I sit and think about it,” Rylan told KMBC-TV . “But if I’m doing my normal things, then I’m not.”

Falling asleep in her princess pink bedroom can be hard sometimes.

“Whenever I go to bed, I think, when I wake up - will I be able to see still?”

It’s a difficult question. But it’s not the only one Rylan and her mom are asking.

After three years in and out of hospitals, no one can tell them why this is happening.

Her mom Bethany Miller, a paramedic by trade, is the most troubled by her patient at home.

“I’ve dedicated my whole life to helping people, and I can’t even help my daughter.it’s so hard,” she said.

But Bethany Miller’s resolve remains steadfast to find a doctor who can at least tell them why her daughter is going blind.

“I know somebody, somewhere . I just know it in my heart. There’s an answer. I know someone can tell us what’s happening and why.”

Rylan’s problem was discovered during a routine eye exam. While they still don’t know the cause, Rylan and Bethany want to urge others to get their child’s eyes checked regularly.

Later this month, Rylan and Bethany will fly to Washington D.C. to visit pediatric specialists. Rylan has one pointed question for her doctors.

“If I need to have my most wonderful times before I go blind . or if we can wait and separate my wonderful time out,” she said.

No matter what the future holds, Rylan is creating lasting memories now, like dressing up for an upcoming dance. And, remembering the vivid colors that have painted her world, if and when it permanently goes black.

“God gave you nine years that you got to see, and that in itself is a blessing because if someone asks you about a butterfly, you know what a butterfly looks like,” her mother said. “Some children have never gotten to see anything.”


Information from: KMBC-TV, http://www.kmbc.com

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