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In this Feb. 21, 2015 photo, Cara O'Neill, left, gives a kiss to her daughter, Eliza, 5, at their home in Columbia, S.C. Glenn and Cara O'Neill started the Cure Sanfilippo Foundation in hopes of saving Eliza, who suffers from the rare disease and is beginning to lose her ability to speak. The disease kills brain cells, causing hyperactivity and autistic-like behavior, then seizures, loss of ability to walk and usually death by the mid-teens. "The next six or seven years will be horrible for her, and then she'll die," her father said. (AP Photo/Rainier Ehrhardt)

In this Feb. 21, 2015 photo, Cara O'Neill, left, gives a kiss to her daughter, Eliza, 5, at their home in Columbia, S.C. Glenn and Cara O'Neill started the Cure Sanfilippo Foundation in hopes of saving Eliza, who suffers from the rare disease and is beginning to lose her ability to speak. The disease kills brain cells, causing hyperactivity and autistic-like behavior, then seizures, loss of ability to walk and usually death by the mid-teens. "The next six or seven years will be horrible for her, and then she'll die," her father said. (AP Photo/Rainier Ehrhardt)

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